Community Resources
ASK does not endorse any specific providers, nor do we advocate for or against any therapies or practices, as we trust that families can and should make their own decisions. We can offer a list of providers if requested. We take information and feedback from families who have been well-served by agencies and pass that on.
If you are a service provider or resource in the West Michigan community, please click here to be added to the directory..
Smart911® – Help First Responders Help Your Loved One
When you call 911, the dispatcher only knows what you are able to communicate during that emergency. Smart911 allows you to create a free, secure safety profile that provides additional information to 911 dispatchers and first responders when you call from a registered phone.
Kent County residents can voluntarily create a Smart911 profile that includes important information about a loved one with autism or other disabilities. This information can help emergency personnel better understand an individual's communication style, sensory needs, behaviors, medical conditions, and emergency contacts.
A Smart911 profile can include:
Communication preferences (verbal, non-speaking, AAC device, etc.)
Sensory sensitivities or triggers
Behaviors that may occur during times of stress
Calming strategies that work well
Medical conditions and medications
Emergency contacts
Home address and household information
Vehicle descriptions and license plate numbers
Recent photographs
Creating a Smart911 profile is free, secure, and can be updated at any time.
If you move, change phone numbers, or your loved one's needs change, be sure to update your profile.
Please note: A Smart911 profile is only available to emergency responders if you call 911 from a phone number that is linked to your Smart911 account. Be sure to register all phones that may be used during an emergency (home, mobile, and caregiver phones).
Tips for Families Completing a Smart911 Profile
The more helpful information you provide, the better prepared first responders can be during an emergency. Consider including:
Personal Information
Recent photograph
Physical description (height, weight, hair color, eye color)
Date of birth
Home address
Communication
Whether the person is verbal, minimally speaking, or non-speaking
How they communicate (speech, gestures, letter board, AAC device, communication app, etc.)
Whether they understand spoken directions
Best ways to communicate with them
Autism-Specific Information
Sensory sensitivities (lights, sirens, touch, loud voices)
Behaviors that may occur when frightened or overwhelmed
Whether they may run or wander
Repetitive behaviors that are typical for them
Favorite calming techniques or comfort items
Medical Information
Diagnoses
Medications
Allergies
Seizure history or other medical concerns
Safety Information
Emergency contacts
Caregivers or family members
Preferred hospital (if applicable)
Vehicle descriptions and license plate numbers
Places the individual may go if they leave home (favorite parks, relatives, familiar businesses, etc.)
Helpful Tips for First Responders
Consider including short statements such as:
"Please speak calmly and allow extra time for responses."
"Avoid sudden physical contact unless necessary for safety."
"May not respond to their name."
"May avoid eye contact."
"Can become overwhelmed by loud noises or flashing lights."
"Parent/caregiver can help interpret communication."
"Do not mistake lack of eye contact or delayed responses as noncompliance."
Review your Smart911 profile at least once each year and update it whenever important information changes.
➡️ Create your Smart911 Profile: https://www.smart911.com/
Autism Alliance Resource Directory
The AAoMI directory connect the community with specialists who can support them with everything from autism evaluations and vaccination appointments to a wide range of professional services.
Disability Advocates Parent / Caregiver
Are you the parent or caregiver of a teen or young adult with autism? Do you need help with the transition to adulthood? Disability Advocates of Kent County has put together a very informative and thorough packet to support you and give you some basics that might be helpful in securing guardianship, SSI, Medicaid, food benefits, housing, etc.!
Music Therapy
ASK commissioned Music Therapists at the Franciscan Life Process Center to create interactive videos for families to view and use at home.
Support Groups for Parents and Cargivers
We hold monthly Support Groups for parents, caregivers, professionals, and anyone wanting to learn more. Typically, the group begins with a speaker, but we always allow for time for questions and networking. Check the EVENTS page for specific details.
Additionally, we have placed recordings of some past Support Groups on the bottom of this page.
Book Recommendations
These come from a very well-read autistic young adult.
The first category is "professionals speaking to parents." This would be books with advice from well-educated therapists, doctors, etc, espousing a particular intervention or philosophy.
Life Will Get Better, by Nicole Beurkens
Uniquely Human, by Barry M. Prizant, PHD, with Tom Fields-Meyer
The second category is "stories from fellow parents," and is the type where a parent (usually the mother) describes their family's journey with autism, what they tried, what worked, and typically ends on a "now things are better" note.
Healing Our Autistic Children, by Julie A. Buckley
The Resilient Parent, by Mantu Joshi
The third and final category is "memoirs from autistic people," and is not specifically parent-centric, but is simply autistic people explaining themselves and their lives to people in general.
Born on a Blue Day, by Daniel Tammet,
The Reason I Jump, by Naoki Higashida
Switched On, by John Elder Robison
Video and Online Resources
Handouts: Network 180 Autism Brochure, Independent Supports Coordination Flyer, Child’s Waiver Program Info Sheet, Network 180 Supports Coordination, Role of the Supports Coordinator
Transition Planning for Young Adults with ASD- Presentation with Dr Michael Wolff (11/10/20)
Disability Advocates Presentation: Securing and Planning Your Medicaid and SSI/ SSDI Benefits (1/21)
Parenting Presentation from Helen DeVos Children’s Hospital Autism Clinic (3/18/2021)
https://abamastersprograms.org/ultimate-homeschool-toolkit-kids-with-autism/ (A practical toolkit offering tips and adaptive strategies to help support children with autism in a homeschooling setting.)
librarysciencedegreesonline.org/libraries-and-autism/ (An easy-to-read guide on how libraries can be more welcoming and supportive for people with autism, with simple tips on inclusive programs and everyday accessibility.)